The Parenting Guidelines for Families of Children with Fetal Alcohol Syndrome/Fetal Alcohol Effects project was originally funded for three years through the Public Health Agency of Canada’s Fetal Alcohol Syndrome/Fetal Alcohol Effects Strategic Project Fund. An amendment was granted in March 2005 that extended the project for an additional year until March 31, 2006.
The main objective of this national project was the development of parent-driven guidelines for parenting approaches for those families caring for children with Fetal Alcohol Spectrum Disorder (FASD). For the purpose of the project, “children” refers to an age range of birth through young adulthood. The personal experiences of parents and front-line workers caring for children with FASD as well as currently available research and resources directed the development of these guidelines. The guidelines are intended to be practical approaches that parents may use to promote the child’s development and enhance quality of life. The National and Regional Advisory Committees (PACs) have been critical to the success of the project and the realization of its objectives.
Development of the guidelines was accomplished by building on the personal experiences of parents and front-line care providers collected through needs assessments, focus groups and an online survey. This information was supplemented with existing research and resources to develop the parent-driven guidelines. In addition, a parenting tool containing the guidelines and additional resources entitled Let’s Talk FASD was produced for use by front-line workers, parents and care providers.
Additional project activities included dissemination of the guidelines across Canada; provision of orientation to the guidelines to communities across Canada; development of an evaluation plan for the guidelines and parenting tool; creation of a project sustainability plan; and enhancement of FASD information sharing through promotion and enrichment of VON FASD list serv and website.
The population group consisted of parents and caregivers of children and adults diagnosed with or suspected of having FASD, those that work with children and adults with FASD and their families, and other key stakeholders in the FASD community.
We invite you to download and share the French and English versions of Let’s Talk FASD, available here in PDF format. The Final Report will be available online in May 2006.
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