
What is the Safe Use Project?
Building Awareness of Safe Use of Medicines Among Family Caregivers
of Seniors and Chronically Ill Children (the Safe Use Project) is
a partnership between the Canadian
Healthcare Association, the Canadian Association for Community Care,
the Canadian Pharmacists
Association and the Victorian
Order of Nurses for Canada.
The Project aims to raise awareness of safe use practices among caregivers
of seniors, and children with chronic illness. It was launched in the
fall of 2005, and ends in March 2008. Health Canada is supporting the
project through the Drug Strategy Community Initiatives Fund. A National
Advisory Panel with experts from across Canada is guiding the Project.
The Project has two components aimed at educating caregivers of seniors
and children with chronic illness. For caregivers of seniors, existing
educational materials are being adapted. For caregivers of children
with chronic illness, an inventory of existing tools is underway. Materials
being developed include a resource guide, facilitator manual for workshops,
literature review, needs assessment, this website and other resources
to support caregivers.
Project Purpose
Goal
- Promote awareness among caregivers of seniors and children with chronic
illness about the safe use of medicine and the prevention of medication
misuse
Objectives
- Nationally disseminate a bilingual workshop and tools for caregivers
of seniors on safe use of medicine
- Assess the need of caregivers of children with chronic illness for
information on the safe use of medications
- Strengthen links among community pharmacists and other community care
provider groups as an ongoing resource to raising awareness regarding
safe medicine use
Context
Medication Use Issues
Poor compliance with long-term therapy is a worldwide problem, according
to the World Health Organization (WHO).1
1. World Health Organization. 2003 Adherence to Long-Term Therapies:
Evidence for Action. Geneva: WHO.
The results are poor health and increased health care costs.2
2. WHO defines adherence as, “the extent to which a person’s
behaviour - taking medication, following diet, and/or executing lifestyle
changes - corresponds with agreed recommendations from a health care
provider.”
One in five Canadians used prescription medicine such as pain pills,
sleeping pills, antidepressants and diet pills in the 1990s. People use
more prescription drugs as they age.3
3. Health Canada. 1995. Canada’s Alcohol and Other Drugs
Survey, Preview 1995. Ottawa: Minister of Supply and Services.
More recently, medication use has risen as hospital stays have decreased.4,5
4. Canadian Institute for Health Information. 2003 Health Care
in Canada. Ottawa: CIHI.
5. Canadian Institute for Health Information. 2004. Drug Expenditure
in Canada 1985-2003. Ottawa: CIHI.
That means more Canadians than ever before who are seriously ill are
using medications outside of controlled hospital settings, especially
frail seniors and children with chronic illness.
Of necessity, family members (or friends and neighbours) – mostly
women – are the main care providers. Access to home care support
varies across the country and from community to community. The incidence
of hospital admissions and readmissions due to preventable drug-related
problems is substantial.6
6. Canadian Institute for Health Information. 2004 Healthcare
in Canada. Ottawa, CIHI.
There is a variety of professionals who provide support services, including
home support workers, registered nurses, physical therapists, social workers,
case managers and community pharmacists.7
7. The Homecare Sector Study Corporation. 2003. Canadian Homecare
Human Resources Study: Technical Report. www.homecarestudy.com.
Apart from family physicians, these community care providers are often
the only source of information for caregivers.
Yet fewer than 10% of such “formal” caregivers have any training
in working with “informal” caregivers. This is despite the
fact that 76% of caregivers want more information, advice or training
on caregiving and community resources.8
8. Ibid.
Seniors and Medication Issues
More than 75% of older Canadians have at least one chronic disease, and
33% have three or more.1
1. Williams, I, Rush, D.R. 1986 Geriatric polypharmacy. Hospital Practice
(office edition), 21, 109-112.
Most seniors living at home are taking medicine, usually two or more
kinds a day.2
2. Ibid.
Seniors make up 12% of the population, but account for up to 40% of all drugs prescribed.3
3. Quinn, K.M., Baker, J. & Evans, B. 1992. A population-wide profile
of prescription drug use in Saskatchewan. Canadian Medical Association
Journal, 146, 2177-2186.
On average, 50% of patients do not take their medicine properly.4
4. Levbovits, A.H., Strain, J.J., Schleifer, S.J., Tanaka, J.S., et
al 1990 Patient noncompliancee with self-administered chemotherapy.
Cancer, 65, 17-22.
Problematic medication use often results in drug-related illnesses, which account for 5 to 23% of hospitalizations.5
5. Grymonpre, R.E., Mitenko, P.A., Sitar, D.S., Aoki, F.Y. et al 1988
Drug-associated hospital admissions in older medical patients. Journal
of the American Geriatric Society, 36, 1092-1098.
Most problems are accidental and caused by confusion, forgetting or misunderstanding.6
6. Lau, H.S., Beuning, K.S., Postma-lim, E., Klein-Beemimnk, L. et
al 1996. Non-compliance in elderly people: Evaluation of risk factors
by longitudinal data analysis. Pharmacy World and Science,
18, 63-68.
Children with Chronic Illness and
Medication Issues
More than half a million children and youth are living with long-term
physical or mental health problems in Canada. Asthma accounts for a large
portion of chronic illness among Canadian children.1
1. Canadian Council on Social Development. 2006 The Progress of
Canada’s Children and Youth 2006.Available at: http://www.ccsd.ca/pccy/2006/.
Nearly 7.7% of children and youth are limited in what they can do by a
chronic condition.2
2. Canadian Institute of Child Health. 2000. The Health of Canada’s
Children. 3rd ed. Ottawa: CICH.
The rates are considerably
higher among Aboriginal children and youth: 22% of Aboriginal youth have
a disability.3
3. Hanvey, L. 2002. Children with Disabilities and their Families
in Canada. A Discussion Paper. Commissioned for the National
Children’s Alliance First Roundtable on Children with Disabilities.
Some need complex care;
43% of children with disabilities have conditions considered severe or
very severe.4
4. Canadian Council on Social Development. 2006 The Progress of
Canada’s Children and Youth 2006.Available at: http://www.ccsd.ca/pccy/2006/.
Among children with disabilities or chronic illness, 41.5% use prescription
medicine daily. Medication is taken at least once a week by 10 to 14-year-olds,
and regularly by 5 to 9-year-olds.5
5. Canadian Council on Social Development. 2006 The Progress of Canada’s
Children and Youth 2006.
For further information about children and medication issues, please
see the recent "Synthesis
of the Literature" report from the Project.
Who Can Benefit?
- Caregivers of seniors, including family members, friends and neighbours
- Caregivers of children with chronic illness, including parents, grandparents,
foster parents, and other legal guardians
- Seniors dependent on family caregivers due to physical and or mental
disability/limitations/illness
- Children with chronic illness who require a network of health, education,
social and other services in order to live with long-term health concerns
in their homes and communities
- Home and community care/support professionals and para-professionals,
including home support workers, registered nurses, licensed practical
nurses, occupational therapists, physical therapists, social workers,
case managers and community pharmacists
- Educators, researchers, all levels of government and health associations
Expected Outcomes
- Wide range of community care and support professionals and para-professionals
trained to raise awareness of safe medicine use among caregivers of seniors
- Trainees using education tools and resources after training
- Improved understanding and more information about:
- How children with chronic illness take their medicine, and related health
outcomes
- Need of caregivers of children with chronic illness for education about
safe medicine use
- Available education tools and resources for caregivers on safe medicine
use
- Effective needs-based education tools and resources for caregivers
on safe medicine use
- New links among community pharmacists and other community care
provider groups in regions where training occurs
- Increased awareness of safe medicine use among caregivers participating
in pilot testing
Results and Products
- A set of tested, effective training and educational resource
materials for caregivers of seniors in both official languages, with
evaluation tools to measure behaviour and attitude change among caregivers.
They will include:
- Training manual with curriculum, teaching aids, evaluation tools
- Screening tool/resource guide for caregivers to determine if medicine
is being used properly and what to do if it is not
- Take-away kits for caregivers with charts to keep track of medications
and conditions
- A literature review of what information is available on how
children with chronic illness take their medicine, including available
evidence on Aboriginal children
- An inventory of current education and training resource materials
with source information and web links where available
- An assessment of the need of caregivers of children with chronic
illness for education on safe medication use
Definitions
Caregiver
A friend, family member or neighbour
who helps someone with daily living or health-related activities.
There are many ways to help, such as helping with medicine, recognizing
problems and discussing them with a health care professional, picking
up prescriptions, arranging for transportation to and from appointments.
In some situations caregivers may actually administer medicine, not
just supervise or assist. Their attitudes towards and knowledge of
the safe use of medicine are very important.
Medicine
Almost anything a person takes
to feel better or become healthier. Tablets, capsules, pills, liquids,
puffers (inhalers), creams, patches, drops, needles, even vitamins,
herbs, ointments, laxatives, aspirin and antacids are all different
types of medicine.
Senior
An older adult, used here to refer
to a population for whom medicine and caregiving are issues. People
react differently to medicine as they age, and older people tend to
take more medicine, which means there could be more medicine-related
problems.
Chronic Illness
Children with Chronic Illness: Persons
under age 18 with a chronic condition or disability who need help
from a caregiver.
Chronic Illness: A health condition diagnosed
by a health care professional that lasts at least six months. Asthma,
juvenile rheumatoid arthritis, acute lymphoblastic leukaemia, cystic
fibrosis, epilepsy, allergies and diabetes are common chronic illnesses
children develop.
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